This page was written by a friend of the Biviano family through the eyes of their oldest son Joey. Listening to Joey and allowing him to share how Billy's diagnosis impacts his life allows those who love him to provide the support he needs.
My name is Joey and I am 7 years old. I live in Hillsborough (Millstone) with my mom and dad, along with my twin brothers Michael and Billy who are 15 months old. My parents waited a long time to give me a brother or sister, but instead of just one, I got two! They are growing so fast and are getting into everything. I just cannot wait until we can all go outside and play ball together.
Michael is climbing, walking, and even saying words now. He reaches up for his cup, plays in his Jump-A-Roo, and even tries to steal my toys! When I tell him “No”, he gets really mad and starts to cry. But Billy is different. He used to like to sit up and try to say words and then one day, he just stopped. My parents took him to the eye doctor who gave him glasses, but that didn’t work. When Michael was walking at their first birthday, Billy just sat there smiling, not saying a word. I would call him by name and he would not turn around, while Michael would turn around right away. We know he can hear because when he was sleeping, he would hear the floor creak when I would walk by and he would wake up. My mom and dad took him back to the doctor. This time he had to go see a specialist called a Neurologist. This doctor did special tests on Billy’s brain.
Then one day a couple of weeks before Thanksgiving, Billy had to go to Morristown Memorial for a really big test called an MRI. My mom and dad were worried because he had to be put to sleep. But the worst came when a whole bunch of doctors came in to the waiting room to tell my mom and dad they found something called a tumor.
Billy’s tumor is not the like normal ones. His is pretty big and the doctors say they cannot take it out. It’s like a spider’s web, wrapped around all the important parts of the brain. The doctors did this test called a “Needle biopsy”, to find out exactly what kind of tumor it was, but even after that they still couldn’t tell what it was. My parents took Billy to all sorts of different doctors, and everyone said the same thing. “We don’t know, we have never seen anything like this,” or, “He needs more testing”. Ugh!
Right after Christmas, Billy and my parents met with another kind of doctor called an, “Oncologist”. He treats people who have tumors and cancers with special medicine. It’s supposed to make the tumor get smaller, but it can also make you really sick. Just last week Billy had to get a blood transfusion, then a few days later he got a fever and had to spend two days in the hospital. He even takes special medicine so he doesn’t throw up. Michael and I are sad and pretty scared. We hate seeing our brother so sick all the time. Sometimes we hear our mom and dad crying…..the whole thing makes us so mad and sad, that we cry too because there is nothing we can do.
So that is why I am writing you this letter with the help of one of my friends. I want you know how much we love Billy and would do anything to help him and my parents. Please join me in surrounding my family in love and saying a few extra prayers for my little brother.
- Joey Biviano
HOW CAN I SUPPORT THE BIVIANO FAMILY?
- Join the prayer chain and 'Friend' Brave Billy's Journey on Facebook: www.facebook.com/bravebillys.journey
- 'Like' Team Brave Billy on Facebook to be reminded of all fundraising details surrounding The Biviano Family. www.facebook.com/TeamBraveBilly
- Support one of the many fundraisers surrounding The Biviano Family which are detailed below. Consider attending and sharing them in your own network.
- Host a fundraiser and contact Steps Together to have it detailed on this page.
- Download this image and update your Facebook cover to help spread awareness about Billy.
- Wear a Brave Billy's Prayer Buddy bracelet to show your support. Suggested donation of $3. Bracelets will be available at all fundraisers.
- Click here to help offset Billy's medical costs by making an online donation direct to The Biviano Family. This donation is not tax deductible.
- Click here to make a tax deductible donation to Steps Together. Steps Together is a Hillsborough based 501(c)(3) organization that assists families in our community facing a medical crisis. Steps Together assists all the families we detail.
Renaissance Hair Salon & Spa in Hillsborough, NJ donated 25% of products and services to The Biviano Family during the entire month of February when clients brought a coupon detailing their effort to support Billy.
On March 9th, Rebecca Newman, Deanna DeRoner & Cindy Sahns hosted a Breakfast for Billy at Applebee's in Hillsborough. 330 enjoyed breakfast and it was the largest attendance ever for a flapjack fundraiser in the Hillsborough location.
March 11th - March 13th, The Roman Gourmet Pizzeria in Hillsborough (Nelson's Corner) donated 15% of their gross sales to The Biviano Family.
March 10th - March 13th, NEC Wine & Liquors sold $5 chances to win a Jason Pierre-Paul Jersey. All proceeds were given direct to The Biviano Family.
March 3rd - March 17th, Jaime Gerard donated 100% of the proceeds from an online Thirty-One shopping event.
March 11th - April 1st, Kelly Kenney hosted a Stella & Dot Online Trunk Show and donated 100% of proceeds from jewelry purchased.
March: Mom's Club of Hillsborough West donates the proceeds from their annual Easter Egg Hunt.
April 10th - Millstone Wine & Liquors hosted a BBQ for Billy. All food was donated by a customer and patrons were invited to dine for a donation.
May 11th, Bounce for Billy was held at the Jump!Zone in Hillsborough. 50% of all proceeds were donated to The Biviano Family. Pretzels were donated by The Pretzel Factory and pizza was provided at a reduced rate by The Roman Gourmet Pizzeria.
May 17th, Comedy for a Cause was hosted Rhythms in Manville starring Pete Correale. Tickets were $25 in advance, $30 at the door. For more information email ComedyForACause@yahoo.com or call 908-707-8757. This event was organized by Maria Lipani, Joe Clapcich & Brian Cooper.
May 18th & May 19th, 100% of proceeds were donated to Billy from a Kindermusik with Ms Jenni Playdate! Cost per child was a suggested donation of $15.
June: Sara Wendt organizes the sales of Rita's discount cards with proceeds being donated to Billy.
Sunday, June 2nd: !mpact Training hosted Bootcamp for Billy! Participants donated $20 (or more) for Billy and took part in a fun-filled bootcamp using cutting-edge equipment.
Saturday, July 13th: Troy Lipani organizes a team to participate in the Rugged Maniac in English Town, NJ. Team Brave Billy participants receive a coupon code for half off the $78 registration fee and then donate the savings to the Biviano Family.
Saturday, July 13th: Carolyn Tighe and Michelle Clapcich hosted a Bowl for Billy fundraiser at Strike 'N Spare Lanes. Tickets were $20 each and included 2 hours of bowling, shoes, dessert, coffee and 3 raffle tickets to win some incredible gift baskets.
July: Yellow Lollipop Photography donated 15% off all profits to Billy for the entire month. Click here to email Lollipop Photography.
September 21st: Dawnmarie McDermid organizes a town wide lemonade stand for Billy. Click here for the facebook page to follow The Big Squeeze.
September 29th: Billy is a beneficiary of The Steps Together united walking/running team.
October 7th: Hillsborough Rotary golfs at the Hopewell Valley Golf Club and names Billy as the sole beneficiary of their annual outing.
November 14th, 6 - 8:30 PM: Holiday Vendor Boutique at !MPACT TRAINING hosts a holiday vendor boutique to benefit Billy!
- William Davison celebrated his 4th birthday by dedicating his own special day to spreading Billy's prayer chain and helping make his holiday season a little brighter.
- Michael Atlas and Nick Callesano, 8th grade students from Hillsborough preparing to make their Confirmation at St. Joseph’s in Millstone host a holiday gift drive for Billy.
- Diane Schilke organizes a gift drive in the office of RE/MAX Preferred Professionals of Hillsborough.
February 1st: Super Sundaes celebrates National Eat Ice Cream for Breakfast Day and names Billy as a beneficiary of the event. 100% of donations were given to the family as Super Sundaes donated all the ice cream.
February 2nd: !MPACT TRAINING hosted their first annual Superbowl Bootcamp for Brave Billy. All participants paid $20 (or more as a donation). Participants wore team (Broncos or Seahawks) colors or any other team/logo gear of their favorite football team, some traditional exercises were offered with additional football-related exercises and drills.
February: Petrocks Bar and Grille sets a goal to sell 500 bottles of water at 50 cents per bottle during the month of February and then match the funds raised. 689 bottles were sold!!
March 8th: Cub Scout Troop 1776 kept Billy in their thoughts and prayers at their Pinewood Derby this past weekend. A dedicated group of people shared his story, sold Billy's bracelets and collected donations in the cafe. Together they raised $300, their largest collective cafe donation ever!
April: PALS Play & Learn Preschool dedicated their Spring fundraiser to Billy. Blooms (bulbs) for Brave Billy could be purchased from Dutch Mills Bulbs and 100% of the funds raised were donated.
June 1st: Billy's friends host a BBQ and Family Fun Day at Central Jersey Nurseries.