Danny Garofalo, 14, Middlesex
This is Danny Garofalo. Danny is 13 years old and has Duchenne Muscular Dystrophy (DMD). In the most simplistic terms, DMD is the most common, fatal, genetic disorder that afflicts boys in their early childhood. It is a progressive degenerative disease that slowly robs the muscles (including the heart and lungs) of their ability to function. All boys with DMD face a similarly short, bleak future that deprives them of their freedom, their independence and eventually their life by their early 20’s.
Danny should be in 7th grade but the school is providing home instruction at this point. For reasons still baffling the DMD experts, Danny has a more aggressive decline of DMD. His heart is in failure. Something that usually does not occur until late teens, early 20's. It is vital that we keep Danny as germ free as possible so he doesn't catch anything that will tax his heart more. Hard enough with two brothers, harder still with a whole school of kids.
Danny's smile can light up a room and his genuine belly laugh is precious. He is sleeping and resting a lot at this point but when he is feeling well, we go to the park in Scotch Plains so he can swing on the handicap swing or take walks with his service dog KD and his baby brother Nico. He is most comfortable in his home surrounded by loved ones piling in his room watching a movie or playing a board game. He loves giggling with his brothers Timmy and Nico. And when he really feels good he loves walking with his buddies for a slice of pizza or watching a Rutgers football game. His favorite football team. He also loves playing Xbox and doing puzzles when he has the stamina to focus on them.
Steps Together learned of the needs of the Garofalo family through our friends at Jack's Kids. We made a contribution the family and are now working with Jack's Kids to bring awareness to their needs and upcoming fundraisers.
How can I help the Garofalo family?
- Host a fundraiser and contact Steps Together to have it detailed on this page.
- Click here to make a tax deductible donation to Steps Together. Steps Together is a Hillsborough based 501(c)(3) organization that assists families in our community facing a medical crisis. Steps Together assists all the families we detail.
- At this time there is no direct online giving or social media pages specific to Danny. If they become available, we will update this page.